Trajectories of Outcome in Neurological Conditions: Quality of Life (QoL) and neurological disease - Phase 2 Demographics and Clinical Info


Study ID: 12495
Short Title: Trajectories of Outcome in Neurological Conditions Phase 2 Demographics and Clinical Info
Organisation: Portsmouth Hospitals NHS Trust
Location: Portsmouth Hospitals NHS Trust
Condition: Motor neurone disease
Main Specialty: Dementias and neurodegeneration
Expected End Date: 01/01/1970
Postcode: 30/11/2019
Contact Name: PO6 3LY
Contact Email: R&D department
Active: No

Inclusion Criteria

Inclusion criteria: 1.Diagnosed with one of the following diseases (first stroke, traumatic brain injury (TBI), multiple sclerosis (MS),neuromyelitis optica (NMO), spinal conditions or motor neurone disease (MND)). 2. Adults who are capable of answering questionnaires. 3. Capable of informed consent. 4. Have given informed consent. 5. For interviews, adults with the condition who are able to speak to a researcher, for any people with communication difficulties we will interview people with the assistance of a speech therapist or other support if necessary. For the questionnaire phase, we will not exclude people with difficulty writing due to their neurological condition and allow use of a scribe who records the answer chosen by the participant. 5. Participants wanting to do the qualitative work and cross sectional questionnaire stage can be at any time after diagnosis and participants wanting to do the longitudinal questionnaires commence within one year of diagnosis.

Exclusion Criteria

Exclusion criteria: 1.Not capable of informed consent 2. Have not given informed consent 3. Suffering from a concomitant serious medical or psychiatric condition

Study summary:

Quality of Life (QoL) for people with disabling neurological conditions is affected by a range of factors, which have received considerable previous research attention. However clinicians


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